Joe slept pretty well last night. He was tuckered out again trying to do what you and I do fairly easily....go to the bathroom. He had a lot of visitors today so those power naps were short ones! We continue to only receive night time hospice help, so we fill the weekday days with friends and family who are so gracious to volunteer their time.
Our friend (and hairdresser) Vicki Y. helped us out today as our day shifter. She made a pot of homemade vegetable beef soup on the stove while she was here helping with Joe's care. We ate it for dinner last night and it was wonderful!
Our friend Donna (who used to take care of Joe's dad when he was ill) stopped by to visit and pick up the shower seat she let us borrow. A friend and classmate of my sister Jenny and a former student of our dad's, Mark (who also has ALS but a seemingly slow progression) called me to offer support and then stopped over to drop off 3 loaves of banana nut bread (yum!). A childhood friend and elementary school classmate of Joe's, Judy, brought a few grocery items I needed (thank you!) and came to see Joe. There were a lot of tears with her visit. She would cry, then Joe would cry, then I would suck it up and went back to work, so I wouldn't cry.
Our friend, Pat, once again picked Dan up from school. My cousin, Mike (not Harry), was in town from Denver to see to his mother's long-term care, stopped over in the late afternoon to see Joe. It had been a long time since they had seen each other and the tears flowed yet again. Joe's cousin, T-Bird, stopped by but couldn't visit because Joe had just fallen asleep. Tammy and her husband, Greg, brought over a hot Mexican dinner (either Tacos or Taco Salad), but we already had the veggie soup hot and on the stove. So, that will be a dinner for another night. Our friend, Jerri, helped with transportation by picking up Dan from work. Joe's sister, Jane, her husband Jeff (who cut our grass again, thanks!) and Stephanie came over to visit.
A big thank you to everyone for all the dinners, offers to grocery shop, kid transportation, etc. We are eternally grateful for all the love you have shown our family.
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